5 Tips to Break Out of Caregiver Isolation

This image is no longer available


Think back to what your life looked like before you became a caregiver. Have you had to give up personal activities since you started taking care of a loved one?

The truth is, you may have sacrificed more than you realize. If you’re like most family caregivers, you may have become isolated by giving up most (if not all) of your social life.

In a recent survey conducted by Home Instead, Inc., franchisor of the Home Instead Senior Care® network, 74 percent of surveyed family caregivers caring for an individual with a dementia illness said they and their loved ones had become more isolated as a result of the disease. This withdrawal from social activities can cause depression, anxiety, exhaustion and a host of other negative effects.

Caregiver isolation can occur due to a variety of reasons, including:

  • Not recognizing the signs of social isolation and taking action to avoid them
  • Lack of family support with caregiving
  • Feeling guilty about asking for caregiving help
  • Difficulty taking a loved one with Alzheimer’s out in public
  • Fear of the unpredictable behaviours that can occur in a person with a dementia illness, such as verbal outbursts

If caregiving has taken over your life to the point where you rarely go out alone or with friends, take heart. You can reclaim parts of your pre-caregiving life and avoid the downward spiral of isolation with these tips.

1. Recognize the signs of caregiver social isolation

Do you routinely turn down invitations for social events? Worse, have the invitations stopped coming because your friends already know you won’t take part due to your caregiving responsibilities? Take a good look at your lifestyle. If you rarely or never participate in social functions anymore, you have become too isolated. Recognizing the problem is the first step toward solving it.

2. Rely on the perception of friends

It is easy to become so wrapped up in caregiving that you are not able to recognize the signs of isolation for yourself. Poll your friends for honest feedback about whether or not you’ve become too withdrawn. If your friends feel you have become isolated, hear what they say and take action to re-engage.

3. Ask for caregiving help from family and friends

Don’t be afraid to state your needs to family members and friends. It is OK to say, “I need to get out of the house for a while this weekend. Can you sit with Mom for the afternoon?” Even better, set up a schedule for others to regularly take over caregiving duties so you can get out and socialize. It will help you feel refreshed and better able to care for your loved one when you routinely spend time with other people.

4. Don’t feel guilty about obtaining respite care

It’s tough to give your best self to your loved one if you feel overwhelmed or depressed due to caregiver isolation. When family members or friends can’t or won’t help with caregiving, look for alternative ways to get out of the house. Professionally trained in-home caregivers can provide a variety of care services and personal interaction with your loved one while you take some well-earned time off.

5. Seek out Alzheimer’s friendly businesses

Remember that isolation can be bad for your loved one, too. To help you both get out of the house more often, look for the Alzheimer’s Friendly BusinessSM seal at local establishments. These businesses have completed an Alzheimer’s training program that equips their staff to better serve people with a dementia illness and their caregivers.

For additional dementia caregiving tips and resources, visit the Help for Alzheimer’s Families website.